News and Milestones

Announcements

News June 2025

The Foundation Announces Collaboration With Garmin 

The Foundation is pleased to announce the collaboration with Garmin, a global leader in GPS technology specializing in products that empower individuals to live healthy lives. As a part of the work together Garmin wearables will be used in Foundation research and trials for research with neuromuscular conditions. The Foundation is a leader in human performance and Garmin is known for its innovative fitness products that are designed to help humans perform at their best. 

Thomas Lehrich the Foundation’s CEO said “We are thrilled to leverage Garmin’s advanced tools for training, tracking, and performance analysis, supporting humans to to best achieve their goals.“ 

“We believe this collaboration and our science data effort will help those with neuromuscular conditions have better outcomes.” Said the Foundations Chief Science Officer. 

About Garmin

Engineered on the inside for life on the outside, Garmin products have revolutionized life for runners, cyclists, swimmers and athletes of all levels and abilities. Committed to developing technology that helps people stay active and elevate performance, Garmin believes every day is an opportunity to innovate and a chance to beat yesterday. 

Foundation Plans

The Foundation announces the corporate strategy plan. Our strategy is named a path to thrive. The strategy components include:

1 Enabling Growth. Innovation and research development that enable partnerships and effectiveness. Building intellectual property and social capital.

2 Operational excellence. Creating resources for the sustained business lines. Supporting the management and leadership team with adequate resources. A solid governance and Board of Directors.

3 Creating Science and Medical Impact. With the vision of making peoples lives better-leverage discovers and relationships through license and deployment of technologies. 

CEO to Attend Legal Forum in NYC

The Foundation’s CEO is participating in November at the annual ALM Corporate General Counsel Conference held in New York City. The ALM Conference is  a legal meeting of the leaders in the technology and biomedical industries. 

May 2025

The month of May is ALS Awareness Month and an opportunity to share our nonprofits commitment to ALS research with friends and colleagues. This month, the Foundation is sharing ideas to help make an impact in our work and spotlights special individuals. Each week this month we feature a topic to enhance ALS awareness.

Week 1 -

In this post we ask readers, can you commit to doing one or two actions for ALS Awareness Month?

This week we feature the benefits of becoming a corporate partner with the ALS Performance Research Foundation. There are so many ways to partner with us to tackle advances in ALS research and help make ALS more treatable. Our partners are in the biotech, fitness, technology, and sports products industry. Begin a discussion with us and learn about how your company and our Foundation can advance neuromuscular research together.

Help us expand our research by becoming a technology, performance or medical partner. To speak with a team member on joining as a corporate partner contact us: info@alsperformance.org

Week 2 -

Last week we featured the benefits of becoming a corporate partner with the ALS Performance Research Foundation. 

This week we highlight the complexities of the neuromuscular condition.  ALS is a diverse disease and each case is different. About ten percent of ALS cases are genetic familial cases caused by genetic mutations and inherited from generation to generation. About ninety percent of cases are called sporadic cases with no known cause. 

Each case however is vastly different with varying symptom progression. Some cases progress quickly while others have slowly progressing symptoms for years. 

We are working on our research to observe and adapt to the spectrum of disease symptoms to improve outcomes for those afflicted with neuromuscular conditions. 

To speak with a team member on joining as a corporate partner or learning more about our research please contact us: info@alsperformance.org 

Week 3 -

This week the Foundation’s CEO participated in a program covering genetics research. Doctors, supporters and leaders gathered with the Medstar Health Research Institute in a program sponsored by the Katzen Foundation to raise awareness and resources for genetic studies.

Week 4 -

The Foundation announces the corporate strategy plan. Our strategy is named a path to thrive. The strategy components include:

1. Enabling Growth. Innovation and research development that enable partnerships and effectiveness. Building intellectual property and social capital.

2. Operational excellence. Creating resources for the sustained business lines. Supporting the management and leadership team with adequate resources. A solid governance and Board of Directors.

3. Creating Science and Medical Impact. With the vision of making peoples lives better-leverage discovers and relationships through license and deployment of technologies.

The Foundation’s CEO is participating at the annual ALM Corporate General Counsel Conference held in New York City this fall. The ALM Conference is a legal meeting of the leaders in the technology and biomedical industries.