News and Milestones

Announcements

The month of May is ALS Awareness Month and an opportunity to share our nonprofits commitment to ALS research with friends and colleagues. This month, the Foundation is sharing ideas to help make an impact in our work and spotlights special individuals. Each week this month we feature a topic to enhance ALS awareness.

Week 1 -

In this post we ask readers, can you commit to doing one or two actions for ALS Awareness Month?

This week we feature the benefits of becoming a corporate partner with the ALS Performance Research Foundation. There are so many ways to partner with us to tackle advances in ALS research and help make ALS more treatable. Our partners are in the biotech, fitness, technology, and sports products industry. Begin a discussion with us and learn about how your company and our Foundation can advance neuromuscular research together.

Help us expand our research by becoming a technology, performance or medical partner. To speak with a team member on joining as a corporate partner contact us: info@alsperformance.org

Week 2 -

Last week we featured the benefits of becoming a corporate partner with the ALS Performance Research Foundation. 

This week we highlight the complexities of the neuromuscular condition.  ALS is a diverse disease and each case is different. About ten percent of ALS cases are genetic familial cases caused by genetic mutations and inherited from generation to generation. About ninety percent of cases are called sporadic cases with no known cause. 

Each case however is vastly different with varying symptom progression. Some cases progress quickly while others have slowly progressing symptoms for years. 

We are working on our research to observe and adapt to the spectrum of disease symptoms to improve outcomes for those afflicted with neuromuscular conditions. 

To speak with a team member on joining as a corporate partner or learning more about our research please contact us: info@alsperformance.org 

Week 3 -

This week the Foundation’s CEO participated in a program covering genetics research. Doctors, supporters and leaders gathered with the Medstar Health Research Institute in a program sponsored by the Katzen Foundation to raise awareness and resources for genetic studies.

Week 4 -

The Foundation announces the corporate strategy plan. Our strategy is named a path to thrive. The strategy components include:

1. Enabling Growth. Innovation and research development that enable partnerships and effectiveness. Building intellectual property and social capital.

2. Operational excellence. Creating resources for the sustained business lines. Supporting the management and leadership team with adequate resources. A solid governance and Board of Directors.

3. Creating Science and Medical Impact. With the vision of making peoples lives better-leverage discovers and relationships through license and deployment of technologies.

The Foundation’s CEO is participating at the annual ALM Corporate General Counsel Conference held in New York City this fall. The ALM Conference is a legal meeting of the leaders in the technology and biomedical industries.